Last month I was honored to present at a national conference of an organization devoted to the
understanding and care of a very rare metabolic disorder, metachromatic leukodystrophy (MLD).
At this conference, I was introduce to an organization that helps parents of children with
any disabling or complex condition.
The National Family Caregivers Association is a treasure chest of great ideas to help families find support, namely:
- thinking about how to obtain benefits to support care
- finding approaches to care that make a huge difference
- managing family time away, together and apart
In short, a very, very valuable source of ideas that make a real difference.
Hope you find it helpful whenever you may need it.
Dr. Arthur Lavin
*Disclaimer* The comments contained in this electronic source of information do not constitute and are not designed to imply that they constitute any form of individual medical advice. The information provided is purely for informational purposes only and not relevant to any person's particular medical condition or situation. If you have any medical concerns about yourself or your family please contact your physician immediately. In order to provide our patients the best uninfluenced information that science has to offer,we do not accept samples of drugs, advertising tchotchkes, money, food, or any item from outside vendors.
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