Last month I was honored to present at a national conference of an organization devoted to the
understanding and care of a very rare metabolic disorder, metachromatic leukodystrophy (MLD).
At this conference, I was introduce to an organization that helps parents of children with
any disabling or complex condition.
The National Family Caregivers Association is a treasure chest of great ideas to help families find support, namely:
- thinking about how to obtain benefits to support care
- finding approaches to care that make a huge difference
- managing family time away, together and apart
In short, a very, very valuable source of ideas that make a real difference.
Hope you find it helpful whenever you may need it.
Dr. Arthur Lavin
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